Have questions? Want to help, volunteer, or support the Mabel Open or the Cystic Fibrosis Foundation?

Reach out today!

1-616-283-3995

mabelopen@gmail.com

15879 Leonard Road Spring Lake, MI 49456

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Mable Jane Monaweck

Mabel is now 5 years old and honestly, growing up too fast! We can hardly keep up with her constantly outgrowing her clothes and outsmarting her parents. She's having a great year in Young 5s at Little Lakers doing science experiments, going on bird walks, studying ocean animals and learning how to READ (teacher mom definitely shed a tear!) She completed an exciting ski season learning how to shred over at Mulligan's Hollow and is looking forward to some sun and sand down in Florida for Spring Break. Her health has been exceptional and unlike her parents, has been able to dodge the virus and all other sickness. Knock on wood, she's had her healthiest school year to date!

Mable Jane Monaweck

Mabel is now 4 years old and continues to be a happy, social, strong-willed girl! She loves going to preschool and telling us all about what she’s learning (Did you know that the groundhog lives in a BURROW?!”)

She loves dancing to music, creating arts and crafts projects and practicing her scooter skills in the kitchen!

Thankfully, Mabel has been extremely healthy throughout the pandemic. Wearing a mask came easy to her and she has only had a few minor colds.

She has been on Orkambi for two years now and we are so grateful for how it is contributing to her health. We are also very excited to announce that the FDA has approved the newly developed drug called Trikafta to be reviewed for use in children 6-11 years old in June!

If approved for this expanded use, an additional 1,500 children with CF will be able to treat the underlying cause of the disease earlier in life. We’ve very optimistic that Mabel will be able to be on the “miracle drug” when she is in kindergarten!

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